fall and falling apart

I feel like it’s been ages since I really blogged. The truth is, summer drew to a close, we took a big trip to Colorado to visit family, then my grandmother unexpectedly passed away and we rushed home for her funeral. Since then, I have felt out of sorts.

fall arrives and I fall apart

A big reason for these feelings is obviously just dealing with an unexpected loss. Sure, everyone knows they will eventually lose their grandparents, and I feel blessed that the girls have gotten to know three of their great grandparents for at least 3 years now. But I also think I just expected my stubborn, sassy Memaw, LeaEtta, my Etta’s namesake, to always be there. For most of my childhood, Memaw and Pops (who died the summer Jon and I got married) lived next door to us, in a house my dad built for them. And for the last several years, Memaw lived with my parents. She was a big presence in our lives, and even as she lost her hearing and got a little more confused, she was always watching Etta and Claire play with a great big smile on her face, especially when they were giving my dad or me a hard time. “My mama and daddy would get such a kick out of them!” she’d say. I can bet that she’s currently telling her mama, daddy, and my Pops all about them as I type. I’m glad my last memory of her is sitting on my parents’ porch, her cracking up because my dad was pestering Claire and making her squeal, and Claire was sticking her tongue out at her Poppi. She loved us all so much. I inherited her love of lipstick, her shopping habit, her stubborn streak, and her tendency to tell it like it is. And I’m so glad one of my baby girls inherited her name. Here’s a relationship tip from Memaw: If you buy new shoes, bring them home and put them in your closet. Then wear them a few weeks later. If your husband asks you about them, just say, “Oh, I’ve had these awhile.” Note: I have a feeling my Pops never really cared about her shoe shopping habits, but I do think she enjoyed feeling like she was pulling one over on him.

fall and falling apart | the adventures of ernie bufflo

It’s not just loss that had me reeling a bit, though. New seasons bring new rhythms, and it’s taken me a few weeks to feel like I’m finding a fall groove. Summer was full of hanging out with mama friends and their kiddos, but back to school and new therapy routines and back to dance class mean less of that this season. On top of that, Jon was working pretty much nonstop since we got back– that’s what happens when shift workers take vacations, all the shifts they missed have to go somewhere, and this meant he worked all of Labor Day Weekend, too. That weekend, I admit, I got rather mopey about how everyone else seemed to be having family fun, and the girls and I were stuck at home, rather tired of and utterly bored with each other. I felt snappish and sad.

But then a miraculous thing happened. A cool front moved in. Fall arrived, and with it, highs in the 70s and 80s, instead of the high 90s. We opened up the windows, we spent some time outside, we got a Zoo Day with friends, we picnicked in the park, and suddenly I feel like I can breathe again. I’ve been going through closets and pulling fall clothes to the fore, pulling out things that no longer fit my growing-like-weeds girls, feeling productive instead of pouty. We will find our fall groove. All is not lost, no matter how I might feel after too many days home alone with three-year-old twins. I may not be giddy about pumpkin spice lattes, and I may be attempting to resist the urge to jump into the cozy clothes I’ll be oh-so-tired-of by February, but I’m happy about getting to spend some time in the sunshine with my golden gals. I’m ready for this change after all.

fall and falling apart | the adventures of ernie bufflo

fall and falling apart | the adventures of ernie bufflo

travel tips with three-year-old twins

Travel Like a Pro with Twins in Tow | The Adventures of Ernie Bufflo

If you’ve noticed I’ve been absent on the blog over the last little bit, it’s largely because we’ve been traveling. First we went to Colorado to visit my husband’s family, and then we made a sad and unexpected trip to my parents’ house when my grandma suddenly passed away. All of this time with family was wonderful, but I also have to admit that traveling with two small kids is often also extremely stressful. I find myself gritting my teeth and wondering why my shoulders are so tight in the days before flying with our kids. I was especially anxious this time, because the last time we flew, last October, Etta screamed bloody murder through an entire 2 hour flight, completely inconsolable, refusing movies, snacks, and screaming “DON’T TOUCH ME, MOMMY!” every time I even tried to help her. Then, of course, she perked up right in time to land, and cheerfully bid farewell to every single passenger as they deplaned, while they gave her looks that said “see you never, demon child.” To everyone on that flight: I am soooooooo sorry.

Since I haven’t written about traveling with twins since the girls were babies, and since this trip actually went darn smoothly, I thought it might be time for an update on some of the things that work for us when traveling with the toddler and preschool set. (If you’re traveling to Disney in particular, check out this post on doing Disney with two toddlers and only one small backpack.)  Continue reading “travel tips with three-year-old twins”

serenity now

Serenity Now: how parenting is like being a super hero in training

Lately, I’ve had the feeling that having children is like becoming a super hero. Not in the get exposed to nuclear waste and suddenly find yourself in possession of amazing mutant powers sense, but in the receive a call to greatness and head off for some really intense training with some kind of fighting master who kicks your ass and teaches you to calm your inner storms and harness all of your strength in the service of something greater. Only in this scenario, my ninja masters are about 3 feet tall and their methods seem a little questionable. Like, they might violate the Geneva Convention. Luckily they’re really cute, because they push me to just about all my limits at least 10 times per day.

I never thought of myself as a super patient or gentle person, but when I think about how much those powers have been tested and grown in the last 3 years of this bizarre baby-led boot camp, I might as well be a super human in comparison to my former self. I don’t always get it right, but luckily my little teachers are very patient and determined to keep testing me until I learn.

They’re so good at it, in fact, that I’ve thought about lending them out so that others can get this sort of zen training themselves. Every time I drive past the ecumenical meditation center, I fantasize about dropping off my two little zen masters to give the folks inside some real mindfulness training. Finding peace in a tranquil room while listening to the soft sounds of a babbling brook? That’s the easy level. Finding peace while two master interrogators pepper you with questions every 36 seconds is some next level stuff. Finding it while someone needs to potty, the other is starving, they’ve just gotten into a hair pulling match over a dollar store toy, you’re 10 minutes late to get somewhere, you haven’t had time to feed yourself all morning, and suddenly everyone hates everything they’re wearing and YOU GAVE ME THE WRONG CUP, MOM, EVERYTHING IS TERRIBLE…well, that’s super hero type stuff.

Most days, these little fantasies make me laugh. When I think about all the ways even my most exasperating moments in parenting are helping *me* to learn and grow, it’s easier to feel something closer to appreciation than desperation. It especially helps to think of myself as Batman and the girls as my little martial arts masters. Because I may not be Super Mom yet, but every day, I’m learning a little more.

it’s apparently breastfeeding awareness month, and for the first time, i’m not sad

it's breastfeeding awareness month, and for the first time, I'm not sad

When I nearly died from complications after delivering our twins, I grieved one thing possibly more than any other: the loss of my ability to breastfeed my babies. Breastfeeding was just something I knew that I would do. It was really important to me, and in our first few days in the hospital, I was breastfeeding Etta and pumping to send milk to Claire in the NICU at Children’s Hospital, too. I remember the agony of my possessed hospital pump that would randomly turn itself to high and threaten to rip my poor nipples right off. I remember the ritual of Jon cleaning all the various parts in the hospital room sink so we could get ready to do it all over again all too soon. And I remember the pride I felt in sending those little 2 ounce bottles of “liquid gold” to my girl recovering from surgery to close her myelomeningocele, feeling comfort that if I couldn’t be there holding her, at least she was getting a little bit of me to strengthen and nourish her. It was so important to me, that when I was intubated and unconscious in the ICU myself, my husband had a lactation consultant bring the pump up, because he just knew I’d be very mad if I woke up and discovered they had let my precious milk dry up.

it's breastfeeding awareness month, and for the first time, I'm not sad

it's breastfeeding awareness month, and for the first time, I'm not sad

Unfortunately, when I woke up, they told me that drying up was exactly what I would have to do, because the medicines I needed to help my heart were not safe for nursing moms, and there were no safer alternatives. I had to stop breastfeeding so my heart wouldn’t stop beating.

From where I sit now, with happy, healthy three year olds, this seems like an obvious choice– the clear, right thing for my health. But at the time it felt rather devastating, because I believed I’d be settling for “second best” for my babies. Oh, how I cried. I remember noticing that even my damn formula can said “breast is best” on it and SOBBING. And for a while, I felt sad or defensive every time breastfeeding came up. Sad because I didn’t get to do something that was important to me. Defensive because I felt like so many people essentially wanted to see a doctor’s note to justify our “choice.” “Breast is best” became a trigger for rage– oh yeah? Let me show you how bonded I am to these bottle-fed babies! Let me tell you about immune systems and antibodies when these formula-fed kiddos haven’t had a single ear infection in over 3 years of life!

it's breastfeeding awareness month, and for the first time, I'm not sad

But now, 3 years in, it’s amazing to realize how all of that has just kind of fallen away. My kids eat food now. They drink mostly water, and sometimes whole cow milk. No one really asks if they were breast or bottle fed. No one really questions our bond, or their intelligence, or their health. They’re just happy, healthy kids, and what seemed SO IMPORTANT and SO DEVASTATING to me back in that hospital room, my breasts and my heart aching for what I could no longer give to my babies, well, it seems so far away and so small now.

it's breastfeeding awareness month, and for the first time, I'm not sad

Today, I don’t feel a twinge of pain or sadness or loss when I see my friends nursing their babies. Today, I can stand alongside other parents and say that our culture needs to do a whole lot more to support nursing parents. And today I also feel a whole lot of compassion for those of us who feel a little too aware during breastfeeding awareness month, too aware of what we perceive as our failings or shortcomings, or too aware of what we perceive as judgment from others, or too aware of loss and pain. To you who are still in that place, I am writing this to say: it gets better. Your babies will thrive not because of what they are drinking, but because of your great love. They will be bonded to you not because of your breasts but because of your hearts. They will be healthy because of your care, not because of antibodies in their milk. They will grow, and they will thrive, and this big deal will shrink and shrink and disappear in the rearview. I promise. I’ve finally made it there.

on babies in bars and kids in restaurants

on babies in bars and kids in restaurants

Kids in restaurants have been a hot topic lately because of a restaurant owner who definitely acted like a jerk over a kid who was maybe or maybe not acting like a jerk while the parents maybe or maybe didn’t do something about it. Until some third party describes what really went down in that situation, I’m not making any judgments about it.

on babies in bars and kids in restaurants

on babies in bars and kids in restaurants

However, as someone who loves food and likes eating out and also has two small humans who often accompany us when we eat out, I did want to talk about eating out with kids. Part of my job as a parent is raising my small humans to be good citizens, who know how to navigate social situations, who know how to act in public. Eating out is part of that. And you can’t learn how to do that until you actually do it. Our kids have been going out to eat with us for all of their three years of life. The best times were probably when they were infants. We could put them on the floor in their baby buckets…I mean, car seats…and they’d sleep the whole dang time while their tired twin parents guzzled cheese dip and margaritas. Local Mexican restaurants and an Oyster Bar near our house were two favorites. As they got to be older babies and early toddlers, we played to our strengths: we went to noisy places, the types with high chairs and kids menus, and we went EARLY. We took toys and sippy cups, and when they fell apart, we took their butts right out, sometimes even all the way home, although that was rare. Now that they’re three, they’ve had years of practice eating out, and also years of practice of being expected to sit in their high chairs, eating their food, at the table with everyone else, until everyone is finished for dinner at home every night. I can’t remember the last time we actually had a bad experience in a restaurant.

Now, we don’t just have to stick to “family restaurants,” but can even go to places with like, actual table cloths and stuff, like in that picture from Forty Two at the Clinton Presidential Center, which may seem fancy, but also has a very courteous wait staff and a GREAT kids’ menu. Strangers have actually remarked to us on several occasions how cute and well-behaved our children are in restaurants, and we smile and tell them thank you, it took a lot of practice, and if they weren’t being cute and well-behaved, we wouldn’t be staying long.

on babies in bars and kids in restaurants
We love the patio at US Pizza. The girls love their spaghetti and meatballs, which can feed two kids for $3.50, and we can walk there.

The way I see it: no one else should ever have a bad time at a restaurant because my kids are being annoying. Generally, if a place has high chairs and booster seats, I assume my kids are welcome, and I expect that they will behave appropriately– otherwise we won’t be sticking around. We don’t take them to bars, though we have taken them to a local brewery, Lost 40, where they enjoyed the heck out of drinking water from little flight glasses and eating cheese dip and bratwurst. (Jon happens to love their beer, so we always have a keg from them in our kegerator at home.)

on babies in bars and kids in restaurants
Etta at Lost 40.

I think the best statement I’ve ever seen on kids in bars was on the menu of a place called The Bird where I had one of the best burgers of my life in Jackson, Wyoming.

Kids in bars and restaurants, some guidelines

I probably would not take my kids to The Bird, because we like having high chairs, and because it really is more of a bar than a restaurant. Once they were old enough to not need a booster seat? Maybe. But I like that they make their standards clear, and I realllllly loved that burger. I’d hope that if they did have a kid or parents who were “messing up,” they’d just politely ask the family to handle the situation or leave, without, you know, screaming at children.

on babies in bars and kids in restaurants
For the record, this is the amazing burger and amazing view at The Bird. A literal cheeseburger in paradise.

Parents want to be able to eat out. Kids need to be able to eat in restaurants in order to learn how to act in restaurants. Obviously kids will mess up along the way to learning how to act, and it’s on the adults around them to model correct behavior, like asking people to leave *politely* if they’re being a disturbance, like getting the heck out of Dodge if your kids are consistently being obnoxious/tired/emotional/loud. If everyone did that, everyone could have a good time not just at The Bird, but in every restaurant.

saving my sanity with a box full of healthy snack options

making sanity saving snack boxes for toddlers | the adventures of ernie bufflo

Little kids don’t have many opportunities to make their own choices. In my house, I usually decide what’s served for meals, what they wear, where we go, who we see, when they nap, and on and on all day long. I’m also always having to tell them no, stop that, don’t do that, slow down, be quiet, etc. So, when I have the ability to offer them a choice without it being a lot of skin off my nose, I try to do it.

Now that my kids are 3, I’ve been trying to cut down on constant snacking. They get breakfast, rarely a small mid-morning snack, lunch, post-nap-snack, and dinner. The days of constantly feeding them bites of stuff all day long are over, because I can reasonably expect them to eat most of a meal. Recently, however, post-nap-snack had turned into a sore point in my day. Claire especially had gotten pretty demanding, wanting more to eat than I wanted to give her, usually leading to her not eating very well at dinner. She also would want the same not-so-healthy snack foods that I would buy for occasional consumption every single day. I’d offer one thing, and she’d pitch a fit demanding a different thing

Then I remembered seeing different things on Pinterest about creating a box of acceptable options and offering kids a limited choice of snacks. One naptime when my husband was home, I took a blissful kid-free trip to the store and rounded up a bunch of healthy snack foods to create two snack boxes, one that lives in our pantry, and one that lives in our fridge. Now, when my kids wake up from nap and feel a rumbly in their tumblies, I just pull out one of the boxes, and they can have one of anything inside. We’ve been using them for a couple of weeks now, and it’s been working fabulously, for the most part. They seem to enjoy exercising their little wills over something, and since I’ve already narrowed their choices to things that won’t ruin their dinner, I don’t have to stress about whether or not they’ll still want to eat at mealtime. I usually set the box in front of them and they know they can only choose from the box, which prevents them from demanding something else they spy in the pantry.

making sanity saving snack boxes for toddlers | the adventures of ernie bufflo

Currently, the pantry box holds bags of almonds, small containers of trail mix, apple sauce pouches, yogurt raisin boxes, seaweed snacks, and pretzels with peanut butter. The fridge box has white and yellow cheese sticks, carrots and hummus, yogurt, and apples. Other ideas include: salsa and chips, cottage cheese, dried fruit, fresh fruit, fresh veggies, fruit leather, and granola.

making sanity saving snack boxes for toddlers | the adventures of ernie bufflo

I’ve noticed an added benefit to the snack boxes: now when *I* feel like I need a snack, I’m more likely to choose one of the readily available healthy options too. It’s also handy for pulling together packed lunches when we need to be able to eat on the go.

Have you instituted anything similar?

threenager

on having threenagers | the adventures of ernie bufflo

Back when we were first entering the twos, people started warning me: “Don’t believe the Terrible Twos thing. Twos are fine. Threes are terrible.” For the most part, I didn’t mind the twos. Yeah, they developed attitudes and the ability to say NO! But I was mostly too enchanted with their growing verbal skills and emerging personalities and ability to walk and fetch things to be too bothered.

Now that I’m a few months into three, I think people were right. THREE, MAN. THREE SQUARED, ACTUALLY. It is the best of times, it is the worst of times. When they are good they are very very good, and when they are bad, they are horrid. Two-year-olds can be defiant, but three-year-olds are committed and they won’t shut up about it. They’ll give you a monologue manifesto about why you wanting them to put on their shoes/eat that thing they asked for and then decided they hate/use the potty/hold a hand/stop stealing toys from their sister/stop WHININGOMG is the most ridiculous thing in the world. And then they’ll put a hand on their hip, give you the stink-eye, and go HUMPH! for emphasis.

on having threenagers | the adventures of ernie bufflo

Claire in particular seems to embody another three-year-old stereotype. She’s a “threenager.” Three going on fourteen, I kid you not. She’s moody and sassy, yes, but she also desperately wants to be older. Here are three things that keep happening again and again.

I must, I must, I must increase my bust…

That was a line from Are You There God, It’s Me, Margaret, a book I loved at 13 and which seems to speak to Claire’s soul already at 3. She’s amazed by boobs. She admires them, she asks me about them, and she compliments me when I’m wearing particularly cute boobs, by which she means a sports bra, particularly my neon pink one. And she asks me daily if her boobs are coming in yet. Nope. Probably not for another 10 years, kid, and then, considering your genetics, probably not by much, anyway.

on having threenagers | the adventures of ernie bufflo

Steal my kisses

Claire has also recently developed an affinity for “wip-stick.” Her mama happens to love a bold lip color, and she is always complimenting me on my color choices. And then she demands a kiss, on the lips. How sweet, you might think. But it’s not about showing affection. She’s hoping some of my lipstick will wear off on her lips, so she can wear it too.

on having threenagers | the adventures of ernie bufflo

Learner’s permit

It’s normal for little kids to be interested in cars. We have a lot of toy cars, but to Claire they’re about as satisfying as when she said she wanted a “baby” for Christmas and she had to keep correcting people, “not a doll, a real one.” Claire wants to DRIVE. Every day when we get in the car, she asks me if she is “tall enough” to drive yet. Nope. And you’re not nearly old enough, either, kid. She has to settle for the race car carts at the grocery store. Which she drives like a crazy New Yorker, hollering “BEEP BEEP! OUTTA MY WAY!” to the folks just trying to shop. I blame the book “I Stink!” about a grouchy big city garbage truck for that one.

on having threenagers | the adventures of ernie bufflo

My little threenager isn’t all sass and shenanigans, though. She’s also full of sweetness. She appears to be a natural-born nurturer and has been dubbed the junior babysitter of our playgroup. She’ll gently and expertly hold all the baby siblings, fetch their pacis and diapers for their mamas, and happily hand them toys and blankies to play with. Mostly, she’d rather play with the babies and chat with the mamas than play with her same-aged peers. She also takes excellent care of her own mama. She’s always asking me how I’m feeling, stroking me gently, giving me giant bear hugs, and picking random moments to whisper “I wuv you, Mom,” and totally melt my heart. She pushes me to my limits, confuses the heck out of me, and totally has my heart.

the grownups ain’t coming


I was having a chat with a friend the other day about being vs. feeling like a grownup. I have realized something crazy lately, mostly since becoming a parent, but also since turning 30: the big secret of being an adult is that almost no one actually feels like one a lot of the time. That and the fact that the only major perk of being an adult is getting to have ice cream or popcorn for dinner if you want to. But mostly the thing about not feeling like a real grownup.

At least I don’t. I find myself, 30 years old, mother of twin three year olds, married, homeowner, scheduler of important things, manager of some serious medical issues, meal planner, writer, friend…and feeling like I’m playing house. I look around at all my responsibilities, which I usually handle just fine, and often wonder, “Who the heck decided I could handle all of this?” It’s like I’m waiting for the real grownups to show up and take charge, only to realize, the grownups ain’t coming. The grownups are us.

I’ve even realized that I seem to think of “adulting” like others might think of playing video games: I’m earning or losing points along the way, and occasionally leveling up. Remembering to pay a bill: points. Actually calling and talking to the insurer or medical supply guy or specialty nurse about something: points. Doing all the steps of my skincare routine for more than three days in a row: points. Exercising, even with kids underfoot: points. Eating the recommended servings of vegetables: points. Remembering the paperwork for the kid thing: points. Not getting sunburned or allowing my kids to get sunburned on the beach vacation: points. Not letting the clothes get funky in the washing machine before switching them to the dryer: points. Hosting actual adult parties: points.

Getting married? Leveled up. Buying a house? Leveled up. Moving halfway across the country? Leveled up. Dealing with loss? Leveled up. Facing my own mortality in a major way? Leveled up. Becoming a parent? Leveled up. Twins? Leveled way up. Having a kid with a disability? Leveled up. Managing my own chronic health issues? Leveled up. Realizing what I do or DON’T want to do with my life? Leveled up.

It’s like I think that if I collect enough points or get to a final level, I’ll stop feeling like I’m pretending at being a grownup and actually feel like an adult. This probably makes me a stereotype of a Millennial, but what can I say, I graduated high school in 2003. My generation allegedly feels like adolescents forever. Guilty as charged. The thing that really lets me know that I’m a grownup is that I now know it doesn’t matter if I feel like an imposter, because I still gotta get shit done. It turns out being a grownup is a lot like being brave: it’s about feeling one way but doing the damn thing anyway. Brave people are still scared. Real grownups still feel like kids playing house a lot of the time. You just don’t tell anyone you’re secretly earning merit badges in your head and move along your merry little way.

mombod

The other day, I started noticing a phrase in people’s tweets. “Dadbod.” At first I just thought it was some sort of inside joke among some of the writers that I follow, like the physical embodiment of dad jeans, or something. But I soon realized that they must be getting this dadbod thing from somewhere. So I did what I usually do (read, used Twitter as my own personal Google) and tweeted something like, “I’m going to need a dadbod origin story. What the heck are you guys all talking about?” I mean, when childless hipster friends on Facebook have started to mention their “dadbods,” there’s some kind of Thing going on. Helpful folks on Twitter led me to this piece from The Cut, which was apparently riffing on something a student at Clemson named Mackenzie Pearson wrote. Basically, “dadbod” is what frat boys with beer guts are now calling their physique. Like, I’m not ripped because I’m too busy having fun, please enjoy my dadbod.

The gist I got from The Cut is that dadbod is something some folks are into. Like folks who really dig Seth Rogen and Jason Segel. I’ve been known to say a dude looks like “a cute dad,” and I happen to be married to a pretty hot dad, so I guess I might fall into the dadbod fandom. Dadbod is apparently just a funny hip coinage for an average, healthy male body that doesn’t spend a ton of time on like, Crossfit or something. If you were to call it what it really is though, you’d probably call it average.

At the end of the piece, though, one of The Cut’s editors says “I can’t stop thinking about how offended I would be if men were talking about the ‘Mombod.'” Except PLENTY of people have made it clear that “mombod” is an actual thing, yes, but also a thing to be avoided like the plague. No one writes appreciation pieces about the mombod and how “doughier tummy areas are good at sex — better, even — than, say, a ripped-abbed [person].” Because obviously, we doughy-tummied mommies are not sexual beings but rather sad sacks who need to GET THAT BODY BACK, RETURN TO OUR PRE BABY BODIES, GET A BEACH BODY, ROCK THAT BIKINI POST BABY, ETC.

mombods are sexy
with my mombod in my mom jeans with my offspring.

Dudes are allowed to have “dadbods” and be seen as cute for it precisely because their worth isn’t as intrinsically tied to their appearance the way women’s worth is.

Here’s the thing though: mombod is real. Some women get “back” to tight abs and perky boobs after they become moms, but I’d venture that most of us are changed in at least some way by the experience, and there isn’t really any going back. Even if you “lose that baby weight,” stuff just isn’t the same anymore. We can see our bodies as damaged goods, or we can embrace the transformation. Growing twins may have left my midsection softer and my belly button unrecognizable, but it also made me feel more deeply connected to my body. And you know what that is, really? A sensual experience. An empowering experience. And sensuality and power and even softness are sexy.

So. If “dadbod” gets to have a moment, if we get to admit that “imperfect” male bodies are desirable, let’s do the same for “mombod” too. Whatever body you have, mombod, dadbod, rippedbod, fatbod, YOU are what make your body sexy, not the other way around.

not something i wanted to pass on

If you’ve been reading for awhile, you’re familiar with the fact that I very nearly died after having my babies and later found out I had a previously undiagnosed heart defect, left ventricle non-compaction syndrome. Further genetic testing revealed that my heart defect was due to a genetic mutation, which led to genetic testing for both Etta and Claire, too. I really really hoped neither one got it, but there was a 50/50 chance they did.

It turns out those odds were exactly right. Etta has the mutation, Claire doesn’t. The good news is, both girls have already had echocardiograms, and we know they don’t have my specific heart defect. But, the mutation can also cause other forms of heart failure, so she will need lots of monitoring to make sure her heart is staying healthy. We see the geneticists later this week, and then we will be referred to cardiology. That’s all we know for now.

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