the moment we realized just how “normal” our daughter’s disability has become to us

Today I took Etta to get her second filling in 5 short years of life. This is hard for me, because I didn’t get my first cavity until I was like 28. (I’m blaming pregnancy for ruining my perfect record. It’s a thing.) Anyway, we’re pretty into good oral health and hygiene, and with her first filling, I felt like a failure for letting it happen.

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Our new dentist here in Denver is awesome, and she said it looks like Etta just doesn’t have good enamel (something about her teeth being hypoplastic?), that it didn’t form right on her baby teeth, and leads to grooves and weaknesses where cavities can form, despite our good oral hygiene. The good news is, on X-rays, her permanent teeth look better, but we may be spending a lot of time at the dentist for these baby teeth.

After we left the dentist, my husband said to me, “Man, Etta sure got the short end of the genetic stick.”

It was only a beat later that I realized how absurd that comment sounds. I mean, we have one kid with spina bifida, but here we are agreeing that it’s actually the “healthy” twin who lost the genetic lottery. And it’s actually kind of true! Etta’s the short, tiny one (finding school uniforms to fit a 3-year-old-sized Kindergartener was a struggle). Etta inherited my cardiac mutation. And now it turns out that she got crappy teeth?

Meanwhile Claire’s differences have just become normal to us, and normal to her as well. Strapping on AFOs, using catheters, scheduling doctor’s appointments and therapies, monitoring for signs of shunt malfunction, wondering if she’s getting a cold or a UTI, they’re just part of our life.

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And remembering how we felt on diagnosis day, or when we came home from the hospital, I realize how huge this mundane life actually is. What at first seemed insurmountable and life-shattering, turns out to just be another way of being a person in the world. Aren’t we all just adapting and trying to use the bodies we were given to the best of our capabilities? Don’t we all sometimes need extra help in certain areas?

So, in case you’re a parent or person who just got a big scary diagnosis, I hope you can read this and take a little comfort in knowing that one day, it may very well all seem very very normal. Just part of life. Not a tragedy at all.

Here we are today, thinking just maybe it’s our able-bodied daughter who got the bum end of the twin genetics dice roll. What an amazing thing.

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to kindergarten they go

Today, Etta and Claire headed off to kindergarten, two tiny girls with giant backpacks. This year, they will be in different classrooms, but they will be right across the hall from each other, and will have recess and lunch together.

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There’s another set of twins in kindergarten this year, two boys, whose blond hair seems to have a counterpoint in each of our girls. They are both in Claire’s class. Their mom, and many others, asked me if I chose to keep the girls together or apart. The truth is, we saw a lot of benefits in both options and decided to let the school handle it. They’ve done great together at Montessori, and all of their teachers there remarked on how they are neither clingy or dependent on each other, nor antagonistic and fighting– they just kind of coexisted like any other two kids in the same class. They are also very different little humans, though, and I think being on their own could give them each a chance to shine and grow in a way they can’t together, and I’m excited to see how this will go. We’ve been reading a great little book called Twindergarten about a set of twins who are in different kindergarten classes, right across the hall from each other, but who are together for recess and lunch, and it’s really helped them prepare for this change.

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I realized at Back To School Night that I’m mostly just excited for them as they embark on this big journey. Their teachers had big sheets of paper on the wall where we answered questions like what we are most proud of about our children, what they are curious about, what they like to read about, etc. To me, the most interesting question was what our hopes and dreams are for our children in their kindergarten year.

I want this to be the year they fall in love with learning and school. I want them to be, like I was, excited to learn and to be with friends. I am excited to watch them learn to read and have the world of books unfold for them, a world that has always been my happiest and safest place. But most of all, I hope they continue to grow and stretch their kind and loving hearts. “Brave” and “kind” are much higher on my list of desirable traits than “smart” or “successful.”

I mostly don’t feel sadness that my “babies are growing up.” I am so thrilled to see them becoming who they are. I am so excited for the adventures that await them. I woke up before my alarm, just buzzing with excitement. I can’t wait to pick them up (about to head out on our bikes to get them!) and hear how their day went!

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once more around the sun

I went to the girls school for their “walk around the sun” today. At first I was like, oh great, a hippy dippy Montessori ritual, but it’s actually pretty cute– there’s a candle in the middle of the circle time rug, and there are “rays” that each say a month of the year around it to make a “sun.” The kids get to hold a globe and walk around the sun once for each year old they are, and they pause after each year for a parent to share a story about that year and show a picture. A cute little ritual that manages to teach kids about the solar system and the months of the year and aging all at once. Plus the girls had seen other kiddos get to walk around the sun and had really been looking forward to it.

It was also good for me to reflect on the past five years. The first year of their lives seemed to last forever, counting time in weeks and months, and, admittedly, though a magical year, full of a lot of loneliness and boredom for me, too. Ever since then, time gets faster. I think five is going to be a great year. I know we will have a lot of fun this summer, and then this fall brings KINDERGARTEN. I just can’t believe we’re here, but I’m happy to be– I love the little people they are becoming. I treasure the privilege of watching them become more themselves every single day.

 

Tomorrow we will be celebrating with a rainbow-themed birthday party. Cross your fingers that the weather cooperates. Colorado in springtime is a trip. We had sunny and 70s all week and today we might get snow.

 

super easy, no-candy valentines that will make your slacker butt look like a pinterest parent

I get that Boomers are like, OMG Millennial Parents And Their Special Snowflake Children. They see our birthday parties and class Valentines and think we’re a bunch of overachievers. And while I’ll cop to going a little overboard on birthday parties, my Valentine game only looks like it took me a ton of time. Our school has never let us bring candy or food items, and frankly, with food allergies what they are, I don’t really want to risk it. The good news is, party favors plus free printables that other overachieving parents make available online equals class Valentine’s win. I’ve made it even easier for you by rounding up some awesome options (if you can’t see the images in your RSS reader, click through to see embedded pins):

Every kid loves bubbles. Cute Valentine bubbles available via Target. You can get 16 for $3. Cheaper than a bag of candy.

I used this idea for Claire last year. Play Doh party pack available at Target for $6.

Mustaches are fun! Target even has Valentine mustaches, because of course they do. 16 for $3.

My kids love tiny things. They carry around purses full of them. Zoo animals via Amazon.

Also in the tiny things category: bugs! Bugs via Amazon.

Turns out bouncy balls look like planets. 12 bouncy balls for $3 at Target. Here’s an alternative bouncy ball printable.

I know my girls would love these heart glasses. 16 for $3 at Target.

Glow sticks are always fun. You can get 100 for under $9 on Amazon, with Prime shipping.

If your kid loves dinos, these are perfect. You can get 72 for $8 on Amazon Prime.

And if you hate the other parents in your kid’s class, give the kids kazoos. Almost as bad as giving a kid a whistle. 12 for $5 at Target.

And something for the teachers (I cleared these with my teacher sister):

We’re big Eos lip balm fans in our house. Plus they’re easy to find when blindly reaching into your purse. Or use any lip balm of your choice.

Just add hand soap or sanitizer.

Works with pretty much any Burt’s Bees product.

Just add nail polish.

Did you know you can gift Redbox gift codes via their website?

Always a crowd pleaser. Just make sure the card has enough on it for at least a grande drink.

a superhero girls’ fourth birthday

My kids are 3 months from turning 5, so now seems like a great time to blog about their fourth birthday party. I was kind of a mess last spring and not blogging much, but I don’t want to not document this on my blog. I enjoy planning my girls’ parties, and I know I can only enjoy this kind of thing for a few short years, so I want to make sure I document them so we can remember them in years to come. Last year, the girls were (and still are) super into superhero girls, and DC Superhero Girls hadn’t quite taken off yet, so I used the magic of the internet to help create a girly superhero theme that both girls and boys could enjoy. I love how adorable their superhero birthday party turned out.

Superhero Girls' Fourth Birthday Party Cake Table Setup

Washi tape plus science fair board = city skyline. (Idea here.) I downloaded the adorable clip art superhero girls from Etsy. I got the print-it-yourself invitations from the same seller.

Superhero Girls' Fourth Birthday Party Cape Favors

Every kid got their own cape when they arrived at the party. I got them via Amazon.

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Girls Superhero Fourth Birthday Party Activities

Activities included mask decorating, Hulk smashing, shield frisbee throwing, silly string “spidey” target practice, and bubble guns. I made the girls’ superhero dresses by sewing cute fabric onto tee shirts.

Food-wise, we served “hero” sandwiches, fruit and veggie trays with dip, and POP! corn. Claire especially loved the popcorn.

Girls Superhero Fourth Birthday Party POPcorn

Overall, it was a wonderful day, and I’m smiling looking back at these photos with people we love in our old house in Arkansas. Now I’ve got to get busy planning a rainbow-themed party for my almost five year olds!

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out came the mama bear

It finally happened. Someone made fun of Claire because of her disability. | erniebufflo.com

It finally happened. Someone made fun of Claire because of her disability.

I was sitting on the couch, drinking wine, folding laundry, enjoying some quiet while Jon supervised the kids out biking and scooting with some of the kids on our block, all of whom are older than our girls, but are generally quite sweet to them. Then Claire and Jon came in the door. “Why don’t you tell your mama what they said?” Jon said.

“Those big girls said my diaper isn’t cool and that they don’t want to hang out with me because they don’t want to hang out with babies who wear diapers. Can I please wear some undies? I want them to hang out with me.”

My face got hot. Claire wasn’t crying. She seemed very matter of fact. “Just a second, baby. Mama’s going to get some shoes and go talk to them.”

I slipped on my wicked good slippers, and in my pjs strode down the street. The two older girls saw me and started running. They knew what they said had been unkind. They ran into their yard. I kept walking calmly down to their house. They hadn’t made it into their houses yet.

“Can I talk to you for a second?”

“We’re so sorry, we got carried away, we know what we said was rude, and we’re sorry,” one said.

“It was unkind,” I said, “But I want to tell you something you don’t know about Claire. Claire was born with a disability called spina bifida. She had a great big hole in her back, and she had to have surgery when she was only one day old. Claire is actually amazing. Claire is one of the strongest people I know. People said she wouldn’t be able to walk and now she walks, and runs, and ride bikes out here with you. Claire is AMAZING. And she wears diapers because of her spina bifida, and NO ONE should ever make fun of her for that, because Claire is amazing.”

“We’re so sorry.”

“Thank you. Can you tell her that when she comes back out here?”

“Yes.”

“Thank you. Have a good night.”

And then I walked back down the street. Claire had sat on the potty and changed out of her diaper when I got home. Jon talked to her about how she can wear undies some day, but she’s got to get better about sitting on the potty, which is something she currently refuses to do a lot of the time.

I sent her back down the street on her bike. “I’m going to go talk to those girls and tell them I didn’t like what they said,” she said. She is still one of the strongest people I know. She stands up for herself. And I will always stand up for her too.

oh to preschool they went!

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This week, Claire and Etta Jane started school for the first time. We found them the school of our dreams– a Montessori in an old house in a historic neighborhood. The classroom is calm and airy. The staff is warm and caring. There’s a giant outdoor classroom where the kids spend a lot of time. It’s homey, sweet, and peaceful, and we’re really excited to have found it and gotten in despite our late-summer move. I had been convinced there would be mile long waiting lists at any school we actually liked, but we ended up finding 3 good options to choose from.

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Purchasing uniforms with Claire, who is not a ham at all, why do you ask?

One thing I really liked was they allowed us to choose if the girls were in the same classroom or not. I know people have lots of opinions about separating twins in school or keeping them together, but I think it’s one of those decisions individual twin parents should be able to make for their unique kids. Etta and Claire have a special relationship. They are best friends (they not only share a room but sleep in the same bed), but not overly dependent on each other, so we didn’t think them being together would be a disruption, nor did we think separating them would be particularly traumatic. It’s just…they’ve always existed together. And when they embarked on their own into school for the first time, it felt natural and right that they would do it together. I love, for example, that they can look out for each other. Etta’s had a rougher transition than Claire has, but Claire has assured us that Etta does just fine at school and has a great time. They were scheming in the car today to get all the girls to sit at the same table for lunch. Another upside? This scatterbrained mama only has to keep up with one class’s crap.

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It feels pretty strange to suddenly have 4 hours a day to myself after 4 years of 24/7 twins. I’m really glad we skipped preschool for their 3 year old year. We had a really wonderful year together going to the zoo, library, and children’s museum each week. And yet this summer I think we were all feeling that we were ready for some space from each other. They were bored with me, and I was frustrated with them, more than before. If I had any doubts that they were ready, the Open House at their school alleviated them. They happily entered their new classroom, pulled out some Works (it’s a Montessori thing), and got busy. They didn’t want to see the playground, they didn’t want to leave, they just wanted to work. On the first day of actual school, Etta was ready to leave us at the curb, and Claire, our sensitive little heart, shocked us by not even crying (EVERYTHING makes Claire cry). When it came time for pickup, Claire didn’t want to go home!

It has also been amazing for my mental health (more on the anxiety thing in a future post) to have some time of my own. I can grocery shop by myself! I can run errands at super speed because I don’t have to constantly put kids in and out of car seats. I can blog! I can read! I can sew! (I’ve already been whipping up headbands and am thinking about selling them.) I can get lunches packed for the next day, dinner prepped, and even do some actual housework (if you think my floors like, ever, got swept with those two underfoot, think again)! I can even volunteer for the Clinton campaign! (More on that later, too)

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Now I think I know why my dad always sang “It’s the Most Wonderful Time of the Year” as we shopped for school supplies. School is wonderful. The girls are thriving, learning, and making new friends, and I GET TO HAVE SOME SEMBLANCE OF MY OWN LIFE.