My kid has spina bifida. The AHCA is a nightmare bill for kids like her, and pro-lifers should be calling their Senators in droves.

I decided, in light of the AHCA, to research the average cost of health care for people with spina bifida. They call them “million dollar babies” for a reason. The first year, according to an article I found on PubMed, is $41,000. Every year after that is around $14,000. (The first year is the most expensive, usually, because of neurosurgery and NICU stays. I’d bet we racked up more than $41,000 in our first month of life.)
In Arkansas, we had private insurance, as well as Medicaid TEFRA, for which we paid an income-based premium and which we qualified for on the basis of Claire’s disability. It covered 100% of what our insurance didn’t. And there’s a lot that insurance doesn’t cover, but that is necessary to help kids with SB be as independent as possible, like therapies and developmental preschool. In Colorado, a supposedly more progressive state, we still have private insurance, but no Medicaid. We end up paying more out of pocket for our daughter’s care, even though we are privileged to have excellent insurance because my husband works for the university hospital.
I remember when I testified before a committee about Arkansas’ proposed 20 week abortion ban. I talked about how 20 weeks is right around the time that people usually get a fetal diagnosis that changes their very wanted pregnancy into a nightmare. One thing that people are wondering when they get that diagnosis is, can we afford to provide this child with the care she will need for the rest of her life? Will this bankrupt us? It’s a very real consideration. And I have read that 60% of people who receive a fetal diagnosis of spina bifida choose termination.
I’m pro-choice. I support safe, legal abortion care for any reason. However, I also truly believe that there are ways we can help people keep these WANTED pregnancies instead of terminating. And one of those ways is helping them afford the care their disabled kids will need for their entire lives.
The AHCA comes from the supposedly pro-life party. And yet this is a deadly bill for people with disabilities, many of whom depend on Medicaid for their life-sustaining care. This bill will make the answer to “Can we provide this child with the care she will need?” a “no.” I am confident it won’t help, and will in fact increase, that 60% termination statistic.
It also creates new worries for us as parents of a kid with spina bifida. Will she stand to have her coverage capped at some point? Will our insurer say, welp, you’re at the limit, we won’t pay any more for you, and kick her off? Will she be able to get a new policy with her pre-existing disability? Will she be able to work as an adult, or will she have to stay unemployed, lest she get too “rich” for her meager benefits? Will my husband have to stay in his job forever to ensure we keep the insurance we have now, because she might not be covered if we have to switch providers?
If you haven’t already called your senators about the AHCA, please do so. It’s a needless “screw you” to Obama that will cause pretty much everyone to pay more for less coverage, and will literally lead to people dying and pregnancies being terminated. Repealing the ACA and replacing it with this cruel bill helps no one but rich folks who will be getting a tax cut. Please call your Senators and oppose this bill. Today.
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I have a new job!

Two months, no blogs– what gives?? Well, here’s the story…

We recently received an unexpected inheritance from Jon’s grandfather, George, who died about a decade ago. George had wisely invested in Denver real estate way back when, and fortuitously, by waiting this long to sell his property, his three kids made a bunch of money, which they generously decided to share with all the grandkids, too. We wanted to honor this gift by investing it wisely, and, convinced by a very business-minded friend who owns two condos in Keystone, we decided to invest in a ski condo which we could manage as a vacation rental and also use ourselves.

Why Keystone? It’s close to Denver, we’ve enjoyed visiting there, and it is a little less pricey than some other ski areas, real-estate wise. I will say it felt surreal to be looking at ski condos that cost more than our actual home in Denver, but we felt pretty confident, thanks to our friend’s experience, that were making a good choice.

This is where I’ve been lately: shopping for, buying, and planning a renovation of our new ski condo. Since I’m a stay-at-home parent, it makes sense for me to be the primary manager of our vacation rental, so I’ve been researching and reading and pinning and shopping and generally obsessing with this condo. Part of the big plan is we want our place to look FANTASTIC in online listing photos, so I have been channeling my inner Joanna Gaines, and reminding Jon that he’s my Chip. I HAVE A VISION, OK?

My goal is to make our condo a stylish, rustic/industrial (no cliche lodge furniture or generic decor for us!), family-friendly destination. Because I know what it’s like to travel with little kids, I especially want to make it the number one unit people want to rent when bringing kids to Keystone. We will have pack and plays, high chairs, night lights, baby monitors, bouncy seats, toys, books, and more to prevent families from having to schlep so much gear. Also, our condo has a private pool not shared with any other buildings, and our unit is on the quiet slope-side of the building with no neighbors above. We also chose a unit close to the playground and skating rink/putt putt course, with the Kidtopia headquarters in the same building. Kidtopia puts on cool kids events and activities– on a recent visit, our girls participated in a strider bike race, and Claire got second place! Our unit has slope views, and you can walk to the lifts.

I figured I would share our “before” photos this week, and next week will be the big reveal of our renovated unit. If you want to go ahead and make a reservation, you can check out our VRBO listing and sign on up!

I am not sure which is more baffling here, the permanent Christmas decor, or the chicken-themed art in a ski condo.

I would describe the “before” aesthetic as “aggressively brown.”

Having both a queen murphy bed and a queen sleeper sofa, plus a third bathroom, means this 2 bedroom condo can sleep a TON of people.

BEARS! DEER! CHEVRON?

Fun fact: tons of Keystone condos have this exact bedding. And wall art. I think it came with the place when it was built in the 90s. Which means tons of folks are happily paying the big bucks to sleep under 20 year old bear comforters. Ew.

Am I the only person who irrationally hates tchochkies on top of cabinets? They just get sad, dusty, and gross.

We are ditching the twin beds for a queen with a lofted twin above it. I’m also turning the skylight nook into a cute play space.

That balcony view, though.

sometimes maybe you should go to bed mad

I love this guy with all my heart, and sometimes we go to bed mad.

I don’t give a lot of marriage advice. I mean, every couple is different, and you have to find your own groove. The most I’ll usually say is “Marry someone you truly enjoy spending time with” and “Be most excellent to each other, and party on dudes.” But, I’ve been married going on 11 years now, and there’s one piece of ubiquitous advice that has always rubbed me the wrong way: “Never go to bed mad.”

This is really dumb advice.

We tell people all the time to “sleep on it” when they’re facing a big decision, and it’s because we know that sometimes you just need to let your brain work on something while you stop thinking about it, and maybe things will seem clearer in the morning. We know that big decisions take time and marination. But we tell people in a relationship that they have to solve all their differences and arguments before the sun sets on them?

Sometimes the thing you’re fighting about is just stupid, and you’re so far in that you forgot that fact, but you’ll realize it when you wake up in the morning and it no longer seems to matter as much.

Sometimes, particularly if you have small children, you’re not really so much in a fight as you are sleep-deprived and irrational, and after some sleep you’ll realize that the whole thing wasn’t even a disagreement.

Sometimes one of you is a hot-head and needs some cooling off time.

Sometimes one of you is an internal processor, and you’ll be able to work stuff out and communicate your side more clearly after you’ve had some time to work it out in your own head for a while.

Sometimes everyone will be able to be calmer and more receptive if you continue the discussion over a cup of coffee the next day.

Sometimes, going to bed mad may even mean one of you storms off to bed and the other conks out watching TV on the couch, and you both wake up missing each other and in a more loving frame of mind the next day.

Sometimes, without the pressure of WE HAVE TO SOLVE THIS RIGHT NOW BECAUSE WE CAN’T GO TO BED BEFORE WE RESOLVE IT, you can actually have the space to come up with a better, more amicable resolution.

Sometimes you really should just go to bed mad. Because in the morning, you’ll find you just aren’t mad anymore.

So, there’s my new piece of relationship advice. Screw “never go to bed mad.” Sometimes you should just sleep on it.

Dear Governor Hutchinson

Cemetery Cross HDR

Here is a letter I just sent to the Governor of Arkansas, because I am heartsick over the state’s plans to execute 8 men right after Easter. Please join me in praying that the Governor will change his plans, and if you feel so-moved, write a letter yourself.

April 6, 2017

Dear Governor Hutchinson,

I was born and raised in Arkansas. I graduated from high school in Hot Springs. Went to college in Batesville. Left for 3 years while my husband did a residency in South Carolina, and returned when he got a job at ACH afterward. I gave birth to twins in Little Rock. They learned to walk there. Though we moved to Denver last summer for a job opportunity, Arkansas will always be my home.

It is with heartsickness and horror that from afar, I follow the news and see that Arkansas plans to fire up what I can only describe as an assembly line of death right after Easter. I was nurtured by the Presbyterian Church of Arkansas. I worship a Jesus who was executed by the state. I love a Jesus whose resurrection, which we celebrate at Easter, revealed the lie of redemptive violence, and showed that the only true power is that of life and love. I know you love that Jesus too.

It is in the name of Jesus that I beg, pray and humbly ask you to stop these 8 executions. Many of the men who stand to die at your hands are mentally impaired, had poor representation, valid reasons to grant clemency and halt the death machine. We cannot worship an executed and risen Lord on one day and execute others slaughterhouse style the next. There is no “Father forgive them, for they know not what they do” in such an act– we know what we do. We know that it is horrific, unChristlike, unhuman. It is a blasphemy.

If I could, I would be protesting at the gates of the governor’s mansion. Instead, I am praying 1,000 miles away, sending you this letter, begging you to do all that is within your power to live out the teachings of the Jesus we both love and celebrate in this season.

Your fellow servant of Christ,

 

Sarah Sweatt Orsborn

 

Image above is by Adam Selwood, via Flickr, used under a Creative Commons license.

skincare review: The Ordinary

erniebufflo reviews skincare from The Ordinary

One common bit of feedback on my last skincare post was that many readers and friends are looking for skincare more on a drugstore budget. I hear that. I tend to stick with “natural” and “organic” products and those are generally expensive, though I have to shout out the Botanics Line (currently I can only find it online at Ulta or Target) for offering cheap, effective, organic skincare. In the spirit of trying to help my friends and readers find affordable, safe, and effective skincare, I decided to order and try some products from The Ordinary. The Ordinary is very hip in the skincare nerd world these days for offering lots of good, active ingredients in good, scientific formulations, at what seem like bonkers prices. The problem is, unless you’ve done a lot of skincare research, it can be hard to figure out what to buy, how to use it, what order to use products in, etc. Seriously, I think Deciem, the company that makes The Ordinary should be paying the skincare nerds at r/skincareaddiction for all the service they’re performing answering thread upon thread about how to use The Ordinary products, which products do what, and in what order.

Note: I ordered these products myself, and this is just my review as someone who bought and tried the products. This is my honest opinion, and this post is not sponsored.

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once more around the sun

I went to the girls school for their “walk around the sun” today. At first I was like, oh great, a hippy dippy Montessori ritual, but it’s actually pretty cute– there’s a candle in the middle of the circle time rug, and there are “rays” that each say a month of the year around it to make a “sun.” The kids get to hold a globe and walk around the sun once for each year old they are, and they pause after each year for a parent to share a story about that year and show a picture. A cute little ritual that manages to teach kids about the solar system and the months of the year and aging all at once. Plus the girls had seen other kiddos get to walk around the sun and had really been looking forward to it.

It was also good for me to reflect on the past five years. The first year of their lives seemed to last forever, counting time in weeks and months, and, admittedly, though a magical year, full of a lot of loneliness and boredom for me, too. Ever since then, time gets faster. I think five is going to be a great year. I know we will have a lot of fun this summer, and then this fall brings KINDERGARTEN. I just can’t believe we’re here, but I’m happy to be– I love the little people they are becoming. I treasure the privilege of watching them become more themselves every single day.

 

Tomorrow we will be celebrating with a rainbow-themed birthday party. Cross your fingers that the weather cooperates. Colorado in springtime is a trip. We had sunny and 70s all week and today we might get snow.

 

how my anxiety coping obsession gave me the best skin of my life

I once read a meme that said having an anxious brain is like having a pet border collie: you have to give it a job, or you won’t like the one it finds for itself. I share my life with a bonkers border collie mix (love you Olive!) and I have an anxious brain, so it made a lot of sense to me.

In the wake of the election, I found myself suffering from obsessing over the news. I was wearing myself out with outrage, constantly on edge, losing hours and hours to reading news and opinions online. I’m not someone who can just stop reading the news, but I knew I needed a new obsession, one that wouldn’t worry me so much.

At the same time, having recently moved from the humid, mild South to dry, cold Colorado, combating dry skin had become a regular concern. I started researching skin care, and my new obsession was born.

This is my face a few months into my new routine, wearing only mascara and tinted moisturizer, in natural light, with no filters.

This is my face a few months into my new routine, wearing only mascara and tinted moisturizer, in natural light, with no filters.

Before I go further, a disclaimer: I am not a skincare expert or a doctor or an aesthetician. I am only an expert on my own skin and my own experiences. I am 32 years old, have skin that tends toward dry/sensitive, and am most concerned about preventing wrinkles and sun damage as I watch the first lines starting to appear on my face. I know that I will age. I think smile lines are some of the world’s most beautiful and hard-earned features. However, I also want to keep my skin looking the best it can at every age. I also like to use more natural/organic things on and in my body as possible. And: I firmly believe in getting enough sleep (something now possible since my kids are almost 5), drinking lots of water, and eating a plant-heavy diet.

My gateway drug was Pixi Glow Tonic. I’d seen rave reviews, it’s available at Target, and my dull, dry skin was definitely in need of a boost, so I picked up a bottle. Within a couple of weeks, I could tell my skin was looking better– smoother, brighter, and those clogged-looking pores we all seem to have around our noses were much less noticeable. It was enough of a change that my husband started using the Glow Tonic too. I wanted to know why it was working so well, and what else might work too.

It turns out I had discovered the wide world of acid exfoliation. The main active ingredient in the Glow Tonic is a fairly low percentage of glycolic acid. I know, the idea of putting “acid” on your face sounds kind of creepy and harsh, and may even conjure images of red, inflamed skin caused by a chemical peel gone wrong. However, it turns out that “manual exfoliation,” like using abrasive scrubs or electric face brushes are actually a lot harsher on your face than ingredients like glycolic and lactic acid, both of which are Alpha Hydroxy Acids, or AHAs. Acid exfoliation works by removing dead skin, promoting cell turnover, encouraging collagen production, and dissolving dirt and sebum trapped in your pores. If you have dull, rough-textured, or sun-damaged skin, AHAs will be your friend.

Once I learned about AHAs and acid exfoliation, I wanted to learn about other active ingredients, and how best to use them for maximum results. Pretty much everyone will tell you that “retinoids” are the gold standard for preventing and reversing signs of aging. Retinoids are Vitamin A derivatives. They work by encouraging collagen production, preventing collagen breakdown in the first place, and exfoliating. They prevent wrinkles, encourage a smooth texture, and help get rid of dark spots. The downsides of retinoids are that they can make skin more sensitive to the sun, and can be irritating and drying to the skin. For these reasons, it is best to start using them slowly, like once a week, and work up to using it nightly. Also: using it at night helps mitigate the sun sensitivity issue, though applying SPF every day is probably the #1 most important thing you can do to prevent signs of aging, and you should apply a good SPF product every day, even if you are not using retinoids. Using your retinoid at night also makes it most effective, because the Vitamin A itself breaks down in sunlight, and thus loses its potency.

Aside from AHAs and retinoids, the other main ingredient I found effective through my research was Vitamin C. Vitamin C is a powerful anti-oxidant that evens skintone, protects skin from environmental pollutants, and even helps protect skin from sun exposure. Vitamin C is a great daytime ingredient because it helps protect your skin from the outside world all day long.

Once I knew which ingredients would have the best impact for protecting my skin and helping it look its best, I started slowly adding them into my routine. I researched products, read forums and blogs, and found new products that I believed would work for me. I focused on serums with my preferred active ingredients rather than toners or face washes, because I want these actives to really sit on and sink into my skin to do their best work.

A word of caution: NEVER GO WHOLE HOG INTO A NEW SKIN ROUTINE ALL AT ONCE. That’s a great way to irritate the crap out of your skin and end up with a bumpy, red, inflamed, itchy, flaky mess. I was already using a retinoid night serum, so that was the first thing I replaced with a more powerful serum. After I knew my skin was tolerating that well, I started alternating every other night with an AHA serum. Since both Vitamin A and Glycolic Acid are exfoliating, I don’t use them both on the same night, because that would be too much for my skin. Once that was well-established, I incorporated a Vitamin C serum for the daytime.

Another thing I did while trying to take better care of my dry skin was I ditched the foaming cleansers. Foaming cleansers can strip your skin of its natural moisture– you never actually want your face to feel “squeaky clean.” Instead, I started using a two-step cleansing process at night, washing first with an oil to remove makeup and dirt, and then with a creamy cleanser to actually clean my skin and maintain its natural moisture barrier. In the mornings, I actually started doing more than just splashing my face with water– if you’re using exfoliants at night, you need to wash that sloughed skin off in the morning, or it remains trapped under last night’s moisturizer. So, in the mornings I use a cream-based cleanser to make sure I’m starting fresh before applying my Vitamin C serum and moisturizer.

Now that you’ve read about all my research and the ingredients I decided to focus on (Vitamin C, Vitamin A/retinoids, and AHAs), here is my daily routine. It sounds like a lot, but I find the ritual soothing for my anxious mind.

Morning Routine

  1. Wash with Botanics Organic Softening Cleanser (this says to wipe it off, but I rinse)
  2. Apply 4 drops Mad Hippie Vitamin C Serum (I put this on and then go downstairs to get my kids up, make coffee, make breakfast, and pack lunches. This gives it time to really absorb into my skin.)
  3. Apply Botanics All Bright Hydrating Day Cream SPF 15 (This is not my favorite, and I will be trying other SPF day creams in the future)
  4. Apply Tarte Amazonian Clay BB Tinted Moisturizer SPF 20 plus a couple of drops of Botanics Organic Facial Oil

morning skincare routine

Evening Routine

  1. First Cleanse: Dermalogica Pre-Cleanse (This is expensive, but my one bottle, a gift for my sister, has lasted months. You get a LOT for the amount you pay, and it’s a really nice oil cleanser. In the future, I promise to test some other, cheaper oil cleansers and let you know what I think.)
  2. Second Cleanse: Botanics Organic Softening Cleanser (same as mornings)
  3. Apply either 4 drops Mad Hippie Vitamin A Serum (my retinoid) or 2 drops Pixi Overnight Glow Serum (an AHA, but I’m not super crazy about this serum and again will be testing other exfoliating serums and letting you know what I think)
  4. After waiting at least 10 minutes for my serums to absorb, I moisturize with either Farmacy Sleep Tight Night Balm (love this, but it’s a bit expensive, so I may try the Botanics Organic Hydrating Super Balm) or Botanics Organic Face Cream
  5. As needed for dryness, I apply more Botanics Organic Facial Oil

evening skincare routine

Note: I am super happy with the Mad Hippie serums. Green company using high-quality, effective, scientifically proven ingredients, and a great value. I’ve been using my bottles since the end of January and have used maybe 1/3. Your Whole Foods or Earth Fare may carry them, but I usually buy online (at the links). Since I’m not loving the Pixi Glow Serum, I may try their exfoliating serum next.

So, there’s my routine. And here’s my makeup-free face, just after washing, in natural light.

erniebufflo with no makeup

Got any questions?

*Note: none of the products here are sponsored and none of the links are affiliate links.