We’re sitting on the couch. Claire reaches up her dimpled hand and touches the knot just behind her right ear, mostly hidden in her loopy white blond curls. “I have an ouchy.” “Oh baby,” I say, “that’s not an ouchy, that’s your shunt! You have that because you have Spina Bifida. Your shunt helps your head feel better.” “Oh,” she says, “I have a buckle on my head.” Continue reading “coming into awareness”
Anyone who’s hung out with Etta knows what those words mean. She is D-O-N-E. When she comes over to me, wherever we are– zoo, story time, splash pad– and says “mama, night night,” I pack it in and we jet. Because apparently, my tiny tot knows herself well, and she lets me know when she’s reached the point of needing to get home and get to bed for a nap ASAP. Continue reading “knowing yourself”
Yesterday afternoon, something I’ve waited actual years for happened:
My child said “I love you, mama.”
This beautiful funny girl with these adorable curls LOVES ME! How lucky am I?!
Etta and I had just picked up Claire from preschool, and we were driving to the gas station when she looked up from her snack (peanut butter cookies), caught my eye in the rearview mirror, and said, “I love you, mama.” Pure. Magic. I tell her I love her all the time. I sing her a little song that goes, basically, “I love my Bear Bear, my Bear Bear loves me.” But I’ve never coached her to put those words together, wanting it to be truly her idea when she finally said it. And then she did. And I melted into a puddle and seeped onto the floor and still somehow managed to type a blog post.
I know it will be a while yet before my Etta girl puts those magical words together, as she’s been on her own little path, speech-wise and has only just recently started putting words together into phrases. Some notable Etta utterances lately: “Uh oh, I broke it” (her perfect first sentence), “Trolley, where are you?”, “My hands are dirty,” and “Otter, come here.”
I just love the things they say, and I’m high on the love from my Claire Bear, especially.
I’m also feeling the love because my husband and I will be celebrating our 8th wedding anniversary on the 29th and are headed out of town this weekend for a little getaway road trip, just the two of us. My bags are packed, and I am so excited to get to have this time together. I’m feeling the love all the way around. I just love this little family of mine.
I’ve made no secret about the fact that Instagram is probably my favorite Internet. Instagram is a happy place, for the most part (unless you’re totally following the wrong people), where folks share the beauty and joy and interesting things in their lives. There’s no BuzzFeed Quizzes. No weird out-there political rants. No ugly. No mean. Just all of my favorite things: food, babies, nature, pets, scenery. It’s the first thing I check when I fire up my phone in the mornings, and often the last thing I scroll through before bed.
Which is why it confuses me when people feel the need to “expose” the reality behind the filtered world of Instagram, or confess that Instagram makes them feel insecure.
Society isn’t in crisis just because I let this kid choose this Elmo cup (and her outfit).
At this point, everyone who knows anyone with a kid has likely seen the latest viral parenting piece from a “British Nanny” letting us know 5 Reasons Parenting is in a Crisis. Most of them left me with that record-scratch sound playing in my head.
For one thing, I’m an ACTUAL PARENT, and I’m not here to tell you a bulleted list of how to raise your kids. Because if twins have taught me anything, it’s that every kid is different, and every parent is different, and only you know what is best for your child. We’re all just doing the best we can here, and my biggest takeaway in two years has been that we all need a little more grace and a lot more help.
But for another, what really bothered me the most is that Emma, the aforementioned Nanny, characterizes every interaction between parent and child as a power struggle, one in which parental will must be exerted at all costs, lest children get the idea that they “are in charge here.” Continue reading “Screw You, “British Nanny,” I let my kids choose their sippy cups”
We haven’t gone to the beach, or anywhere really, which to me is usually the mark of a great summer, but I think I’m actually having one of my best summers ever. Summer is sort of an abstract concept to me, these days, but it really only relates to the weather. My life is no longer measured in semesters. Claire’s developmental preschool is year round. My husband doesn’t get summers off from the ER, despite my never ending disappointment that only students get a summer break. And after getting over my weirdness about planning fun for just Etta and me because of “guilt” about Claire being “left out,” Etta and I have kind of gotten into a little routine.
I’m friends with a lot of hippie types who love the earth and animals and kale and stuff. I love all of those things too. But something that puts me at odds with some of those folks is: I take my kid to the zoo on a weekly basis. And it’s actually become one of my favorite things to do.
I love the zoo because it’s a great place to take my toddlers and also get some social time in myself. It’s outside, so Etta in particular is happy right off the bat. There are animals all over the place for practicing our words and animal sounds. It feels free, because we bought a membership, for what I thought was a very reasonable price. There’s a really great, fairly accessible playground where I can literally just sit on a bench and my kiddos can get themselves up and down the slides, even Claire. The entire place is stroller/handicap accessible. The food prices are reasonable, and they give members a discount. There’s a train and a carousel. And, most importantly, I can meet up with a posse of other moms, and we actually get to chat and hang out as we push our caravan of strollers around the zoo. Continue reading “Put Me In the Zoo”
The things kids do on their own that no one has ever shown them have so far been one of my favorite things about parenting. They really do rub their eyes when sleepy. They really do say “nom nom nom” while eating, even though they’ve never seen LOLcats. And sometimes, they show me the roots of cliched expressions. Continue reading “spitting mad”
Today, Etta and Claire’s nursery (in our old house) is featured along with several other twin nurseries in a post on Parents Magazine’s website. That nursery was a real labor of love, and everything in it besides the cribs and bedding was handmade, reused, or repurposed. It will always hold a special place in my heart as the place we first brought our babies home. Timehop just reminded me the other day that two years ago was the girls’ first night in their room in their cribs– they were ready at 3 months, but this mama slept on a futon in there for a week! Time has flown! Side note: does this mean I can add “design work featured by Parents Magazine” to my resume? Ha!
A year ago we said goodbye to our little rental house and moved in to a place of our very own. When we moved, the girls’ room was the first priority– I wanted them to feel comfortable and at home right away. The biggest difference between their first nursery and their current toddler room is that we left the navy floral wallpaper behind, and had their walls painted a lovely lavender. We’ve also ditched the crib sides for toddler beds (love that our WalMart BabyMod cribs converted so easily!), and added things like pillows and comforters now that we don’t have to worry about them smothering in their sleep (seems like just yesterday swaddling was my gospel and pillows were the enemy, now they have actual bedding!). I gave you a peek when we first moved in, but here’s their room as it looks today. Like, right this minute– I found out that the Parents post had gone live and tidied up a bit so I could show you how the nursery has changed to suit two two-year-olds.
View from the doorway into their room. The abstract painting was made by one of my husband’s colleagues. The tent is from Ikea.
#spinabifida mom tip: a small shopping cart makes an excellent mobility tool at an outdoor Easter egg hunt.
If you read my Twitter bio, you’ll notice that among the facts about myself I chose to include in my scant 140 character allowance, I use the phrase #spinabifida mom.
This means my feathers were somewhat ruffled last night when someone I follow (and like!), whose baby has recently undergone surgery, expressed bewilderment that some moms choose to identify themselves through their children’s illnesses. For one thing, my daughter’s disability is not an illness. It’s not something that we can treat and eventually put behind us. It’s part of who she is and has been since long before she was born. It has shaped our lives in many ways up to this point, and it will be a defining (note I said “a” and not “the”) factor in the rest of our lives. Spina Bifida will mean more surgeries. It will mean more therapies. It will mean doing many day-to-day life processes differently. It will mean concerns about the accessibility of public places and the adaptability of certain activities. It will mean advocacy and activism and acceptance. It’s just a fact that it’s a huge part of Claire’s life, and, because we are her parents, ours. Continue reading “why I call myself a #spinabifida mom”