
My kid has spina bifida. The AHCA is a nightmare bill for kids like her, and pro-lifers should be calling their Senators in droves.

In 2008 or so, around the time I started this blog, I went down a rabbit hole that changed my faith forever. I think it was because I was a Relevant magazine subscriber and frequent message board contributor there (if you were on the Relevant boards at any point in the first decade of the 2000s, you may remember someone named funnyface with an Audrey Hepburn avatar). Thanks to Relevant, I heard about Rob Bell. I started listening to his sermons (and, briefly, to some Mark Driscoll sermons because I thought the two Mars Hills were related: BOY THEY WEREN’T), reading his books, and then reading the people he footnoted in his books. Rob Bell, Dallas Willard, Brian Maclaren, and Shane Claiborne radically revolutionized my thinking.
The Way of Jesus became not primarily a creed I promised to believe in but an actual lifestyle. It changed the way I ate, the media I consumed, my politics, everything. Heck, it’s still changing me. Shane in particular challenges areas that I might not actually want challenged all the time, particularly my consumerism. By the way, I told him this when I had the opportunity to meet him last year, as I had helped lead a class at church based on his and Tony Campolo’s Red Letter Revolution, and then he came to speak. He smiled. He really doesn’t care about my angst around wanting All The Things.
Shane literally lives his faith in a way few do. He’s been a radical and a resister of empire since at least the Bush administration. And I’m finding myself drawn back to his work at the beginning of the Trump regime (I refuse to call it an administration, because an administration implies some level of competence and experience and reason that does not exist with this presidency). We’re only a week in, and I’m already finding my emotional and spiritual reserves tapped, my cynicism rising, and my anxiety raging. I need to get grounded in things that will feed and fuel me through months and years of this. I’ve been doing things that busy my hands and occupy my mind, like sewing, cooking, and crafting. I took a long walk with my dog yesterday while listening to a Robcast from Rob Bell, and it felt so good, I’m planning to do it more often. And I’m coming back to the book by Shane that changed my faith in 2008.
Get this. It’s called Jesus for President: Politics for Ordinary Radicals. You should absolutely get a copy. (That was not an affiliate link, btw. In fact, it’s to the used copies of the book, because Amazon is currently out of stock on the paperback.) In particular this week, my heart is drawn back to the Litany of Resistance in the back of the book. Since Shane says he invites readers to use and adapt it, I feel ok reprinting it here. I am thinking of writing out a copy so I can read it every day. I pray it fuels your reserves for resistance as it does for me.
from Jesus for President by Shane Claiborne and Chris Haw
One: Lamb of God, you take away the sins of the world.
All: Have mercy on us.
One: Lamb of God, you take away the sins of the world.
All: Free us from the bondage of sin and death.
One: Lamb of God, you take away the sins of the world.
All: Hear our prayer. Grant us Peace.
One: For the victims of war.
All: Have mercy.
One: Women, men, children.
All: Have mercy.
One: The maimed and the crippled.
All: Have mercy.
One: The abandoned and the homeless.
All: Have mercy.
One: The imprisoned and the tortured.
All: Have mercy.
One: The widowed and the orphaned.
All: Have mercy.
One: The bleeding and the dying.
All: Have mercy.
One: The weary and the desperate.
All: Have mercy.
One: The lost and the forsaken.
All: Have mercy.
One: O God, have mercy on us sinners.
All: Forgive us, for we know not what we do.
One: For our scorched and blackened earth.
All: Forgive us.
One: For the scandal of billions wasted in war.
All: Forgive us.
One: For our arms makers and arms dealers.
All: Forgive us.
One: For our Caesars and Herods.
All: Forgive us.
One: For the violence that is rooted in our hearts.
All: Forgive us.
One: For the times we turn others into enemies.
All: Forgive us.
One: Deliver us, O God.
All: Guide our feet into the way of peace.
One: Hear our prayer.
All: Grant us peace.
One: From the arrogance of power.
All: Deliver us.
One: From the myth of redemptive violence.
All: Deliver us.
One: From the tyranny of greed.
All: Deliver us.
One: From the ugliness of racism.
All: Deliver us.
One: From the cancer of hatred.
All: Deliver us.
One: From the seduction of wealth.
All: Deliver us.
One: From the addiction of control.
All: Deliver us.
One: From the idolatry of nationalism.
All: Deliver us.
One: From the paralysis of cynicism.
All: Deliver us.
One: From the violence of apathy.
All: Deliver us.
One: From the ghettos of poverty.
All: Deliver us.
One: From the ghettos of wealth.
All: Deliver us.
One: From a lack of imagination.
All: Deliver us.
One: Deliver us, O God.
All: Guide our feet into the way of peace.
One: We will not conform to the patterns of this world.
All: Let us be transformed by the renewing of our minds.
One: With the help of God’s grace.
All: Let us resist evil wherever we find it.
One: With the waging of war.
All: We will not comply.
One: With the legalization of murder.
All: We will not comply.
One: With the slaughter of innocents.
All: We will not comply.
One: With laws that betray human life.
All: We will not comply.
One: With the destruction of community.
All: We will not comply.
One: With the pointing finger and malicious talk.
All: We will not comply.
One: With the idea that happiness must be purchased.
All: We will not comply.
One: With the ravaging of the earth.
All: We will not comply.
One: With principalities and powers that oppress.
All: We will not comply.
One: With the destruction of peoples.
All: We will not comply.
One: With the raping of women.
All: We will not comply.
One: With governments that kill.
All: We will not comply.
One: With the theology of empire.
All: We will not comply.
One: With the business of militarism.
All: We will not comply.
One: With the hoarding of riches.
All: We will not comply.
One: With the dissemination of rear.
All: We will not comply.
One: Today we pledge our ultimate allegiance to the kingdom of God.
All: We pledge allegiance.
One: To a peace that is not like Rome’s.
All: We pledge allegiance.
One: To the gospel of enemy-love.
All: We pledge allegiance.
One: To the kingdom of the poor and broken.
All: We pledge allegiance.
One: To a king who loves his enemies so much he died for them.
All: We pledge allegiance.
One: To the least of these, with whom Christ dwells.
All: We pledge allegiance.
One: To the transnational church that transcends the artificial borders of nations.
All: We pledge allegiance.
One: To the refugee of Nazareth.
All: We pledge allegiance.
One: To the homeless rabbi who had no place to lay his head.
All: We pledge allegiance.
One: To the cross rather than the sword.
All: We pledge allegiance.
One: To the banner of love above any flag.
All: We pledge allegiance.
One: To the one who rules with a towel rather than an iron fist.
All: We pledge allegiance.
One: To the one who rides a donkey rather than a war horse.
All: We pledge allegiance.
One: To the revolution that sets both oppressed and oppressors free.
All: We pledge allegiance.
One: To the way that leads to life.
All: We pledge allegiance.
One: To the slaughtered Lamb.
All: We pledge allegiance.
One: And together we proclaim his praises, from the margins of the empire to the centers of wealth and power.
All: Long live the slaughtered Lamb.
One: Long live the slaughtered Lamb.
All: Long live the slaughtered Lamb.
Or in my case, do it twice a week.
If I call my family or best friends on the phone, they usually answer with a panicky “IS EVERYTHING OK?” This is because I do not like talking on the phone. I hate it. Once, my voicemail was borked for like 6 months, and I didn’t realize it. I was just delighted that everyone had finally realized that texting is my love language and stopped calling me.
But, my kids recently started preschool, and I signed up to volunteer for the Hillary Clinton campaign in my newfound free time. And you know what they needed me to do? Phone bank. Yep. I go in, and they hand me a flip phone and a list of names to call. Thank God they’re at least people who have supported Democrats in the past, because getting yelled at by Trump supporters on the phone isn’t something I want to deal with– seeing them pop up in my Twitter mentions is bad enough.
So yeah, twice a week, I go do a thing I utterly hate. I actively dread it before I go. But I push through the awkwardness and anxiety because I think winning this election (and electing Democrats to the House and Senate) is SO IMPORTANT. I want to be able to tell my kids one day that I did everything I could to stop Donald Trump and elect our first woman president. The idea of a Trump presidency gives me actual nightmares. Knowing that I’m helping stop it helps me sleep at night.
Do you have any free time at all? Does the idea of a Trump presidency scare you? Then push through the awkwardness with me and sign up to volunteer. Go to hillaryclinton.com, click ACT up top, and sign up. An organizer will contact you (mine’s an awesome guy named Cortrell) and get you signed up to do whatever you can in whatever time you have. You might end up phone banking. You might register voters. You might canvass your neighbors. You might do data entry. But you’ll be helping America avoid a Trump presidency, and that is a BIG FREAKING DEAL. It’s worth doing, even if the idea of calling strangers on the phone makes you break out into a cold sweat. We can do this. After all, we’re #StrongerTogether.
Today, I spoke before an Arkansas senate committee. Last night I was on the evening news.
Rep. Andy Mayberry is making national headlines by trying to ban abortion after 20 weeks of gestation (that’s the halfway mark, FYI). He claims this is because this is the point at which a fetus begins to feel and respond to pain, and he cites some studies, but this is hardly an established fact, and is controversial in the medical community. In the committee today, he testified that 98% of abortions happen before 20 weeks. Why would the minority get such a late abortion? It’s not because they just didn’t get around to it or had a sudden change of heart. Something big happens at 20 weeks. It’s the point in a pregnancy when the “big ultrasound” happens. The one that tells you if you’re carrying a boy or a girl (or two girls, in my case), but also the one that tells you for the first time that there could be something seriously wrong, even life-threatening, with your fetus. I know what it’s like to sit in that ultrasound room and get bad news. Like Andy Mayberry, who also has a daughter with spina bifida, I am fortunate that our news wasn’t as bad as it could have been. My daughter and the Mayberry’s daughter have a condition that is treatable and manageable and won’t stand in the way of a full life. Many parents are not so fortunate. For many parents, that moment in the ultrasound room is what turns a wanted pregnancy into a nightmare of heartbreaking news and difficult choices. Placing an abortion ban at that point in a pregnancy leaves these parents without options right when they need them most. It places a legislature between families and their doctors, right when those families most need compassionate care.
I know some will say that the bill has been amended to include exceptions for the health of the mother, for fetal anomalies, and for rape and incest. But as one of my own doctors testified before another committee, when we’re talking criminality for doctors who provide abortions, how much of threat does there have to be before it’s “enough” to justify an abortion? I have a congenital heart defect and a previous severe cardiac pregnancy complication, but no one can say exactly how risky another pregnancy would be for me. My doctors agree that I should not have more children for the sake of my health, but my condition is very very rare, and there isn’t much data on it, let alone actual odds of my survival. Do you think my doctors are willing to risk jail time and the loss of their career and livelihood on my chances of survival? I don’t. And yet I am not willing to risk leaving my girls motherless, and should my IUD fail (as it could, I personally know people who became pregnant with an IUD), I would not think twice before terminating to protect my own life and stay here to care for the girls who need me.
The bill passed the committee despite my testimony. It will probably pass the Senate. The governor will probably sign it. I fear for the state my girls will grow up in, and I fear for their rights and mine.
For every mother who testified that she’s glad she carried her anencephalic baby to term (that’s a baby with no brain and a damaged skull, with no chance of survival outside the womb), there are mothers thankful they had the opportunity for a post-20-week abortion (essentially an induction of labor), to prevent needless suffering for her and her doomed child. For everyone like Andy Mayberry and me, whose kids will have challenges but lead full and happy lives, there are people who got literally fatal news. For everyone like me who survived pre-eclampsia and peri-partum cardiomyopathy, there are people whose fatal complications developed too early to save themselves and their babies, and were forced to deliver to save their own lives, meanwhile their babies could not be saved. For everyone on the other side who calls themselves a compassionate conservative fighting for life, there is someone like me, literally fighting for her own, asking for compassionate choices when we need them most.
If you’re in Arkansas, please start writing to your senators and the governor and urge them not to let this bill pass. Post 20-week abortions are rare because they only happen in the most dire of circumstances. These people deserve compassion.
I have to say up front: I do not consider myself an Evangelical. I grew up Presbyterian (PCUSA) and have only gotten more “liberal” theologically from there. Jesus is still alright with me.
My friend Sarah turned my attention to recent polling of Evangelicals on the issue of the federal budget. Apparently, were they in charge of the government’s spending, Evangelicals are more likely than the average American to want to cut funding for: aid to the poor around the world, aid to the unemployed in our own country, and funding used to protect and care for our environment. From the piece: “evangelicals were more supportive of funding cuts in every area except military defense, terrorism defense, aid to veterans, and energy…Evangelicals were more likely to favor an increase in defense spending (45 percent) compared to non-evangelicals (28 percent).”
From this Jesus-follower’s perspective? Talk about bassackwards. Good gravy.
The defense spending is particularly troubling to me. We’d rather spend money to wage war against the people of the world than to spend money on foreign aid to help them build the sorts of stable economies and governments that make more less likely? And we’re not sure we’re even spending enough money on the military and war in the first place?
It makes me wonder if the translations of the Bible those other folks are reading are just WILDLY different than the TNIV I usually read. My love for Jesus compels me to care for the poor and needy and unemployed, both in my own country and around the world. My love for Jesus compels me to care passionately about God’s creation, desiring to treat it with the respect I’d treat anything I borrowed from a friend, and to preserve it so it can be enjoyed by future generations. My love for Jesus compels me to believe that even my nation’s enemies are my God’s children, and to oppose all violence and war. And if I were to be making my nation’s budget based on what I know about Jesus, I’d be cutting spending on violence and war, and increasing spending to help the most vulnerable among us, particularly during a global recession.
*Edited to add: of course I understand that many Evangelicals make care for the poor a private concern, and think that if the Church did its job, the government wouldn’t need to step in. But, when this polling data so clearly demonstrates support for militarism, I have to wonder if the public/private concern is really the issue here, and not just some really whacked out priorities.
I’m just asking for bizarre Google searches with two posts that mention boobs in one day, but I had to throw this up here. Apparently Glenn Beck and Matt Drudge are trying to cause a kerfuffle because they believe Michelle Obama is disgracing America with her slightly-cleavage-revealing attire at a recent state dinner. Before you go assuming she looked like J.Lo in that Versace dress, here’s what FLOTUS wore that has caused the uproar:
Beck said on his radio show: “I don’t think I’ve ever seen the first lady with her breasts all smooshed up, I mean, what is that?”
My first thought was, really? Does Glenn Beck even know what the fashions were in the late 18th and early 19th Centuries, back when his heroes, the Founders, were still around? Because seriously, get a look at the racks on some of these first ladies:
I mean, I know it’s not even necessary to bother to point out how ridiculous Glenn Beck is, but geez. C’mon.
Back during the whole “Hiking the Appalachian Trail” fiasco, I wrote a lot about my state’s governor, Mark Sanford. I’ve written about his marriage, I’ve written about his infidelity, I’ve written about his ties to C-Street’s “The Family.” I’ve created an entire tag, Annals of South Carolinian Ridiculousness, largely thanks to his antics, though Jim DeMint and Lindsey Graham have certainly contributed to that category.
And now, my fair governor is in the news once again. His wife having filed for divorce and written a tell-all book after their efforts to save their marriage failed, he is trying to reunite with the Argentinian woman he calls his “soulmate.” And the thing is, I’m fine with that. I can’t say why exactly, but somehow, I’m less bothered by a man who simply fell in love with the wrong woman at the wrong time, than I am with an Elliot Spitzer screwing prostitutes behind his wife’s back after making a career going after prostitution rings, or John Edwards cheating on his dying wife with a bimbo, and then failing to wrap it up, all the while thinking that he could still run for president and no one would know about his love child. Somehow, I’m sympathetic to love, even if it’s narrated by poorly-written email poetry about tan lines.
What I’m less sympathetic to are Sanford’s policies, particularly his veto this week of a proposed tobacco tax increase in a state with the lowest tobacco taxes in the nation. As someone concerned about childrens’ health in particular (and the wife of a pediatrician), I know that higher tobacco taxes are a proven way of keeping tobacco out of kids’ hands and a great way to fund tobacco use prevention programs. According to the SC Tobacco Collaborative, “Studies show that every 10 percent increase in the price of cigarettes reduces youth smoking by about 7 percent and overall cigarette consumption by about 4 percent.” Keeping kids from smoking is a key way to prevent adults from smoking and make our nation a healthier place, keeping health care costs down for all of us. According to the American Academy of Pediatrics, most smokers have their first cigarette between the ages of 11 and 14! Thankfully the House overrode his veto, and there is hope the Senate will do the same.
It’s just a shame that yet again, the governor’s love life is detracting attention from his more serious missteps, like the ones that put SC children at risk.
So, Sarah Palin’s latest thing is telling her fans to approach people with Obama stickers on their Subarus and ask them, “How’s that hopey changey thing workin’ out for ya?” You don’t need me to break that down for you, but let me just say that if I manage to avoid approaching people who STILL have Bush ’04 stickers on their cars to thank them for helping destroy our country for 8 long and horrible years, and if I can avoid sticking my tongue out and hollering “Ha ha, you LOST!” at people who have McCain/Palin stickers on their cars, then maybe Palin fans could avoid bugging me about my Obama car magnet. Not to mention, some guy already ran a father and his daughter off the road for having an Obama sticker on their car, BEFORE Palin made that statement, so she’s basically inciting violence (again).
But then, today, I saw some bumper stickers on a Subaru that made me want to flag the drivers down and ask them if they wanted to be BFFS. I saw this on my way home:
Because that’s a crappy phone picture I took all stalker style (I blurred out the license plate so as not to be too stalkeriffic), I’ll tell you what some of the stickers say: “Pro-child, Pro-Family, Pro-Choice” “Vaginas” “Uppity Women Unite” and “My kid has more chromosomes than yours.” SC, I probably don’t need to tell you, is quite a red state. So seeing a bunch of feminist and disability activist stickers on a car is rare and rather heartwarming for this bleeding heart liberal. I wish I could have pulled up alongside and waved and told the driver, “Hi, your stickers rule!” But the traffic didn’t allow. I sure hope that Subaru driver doesn’t get accosted by Sarah Palin fans, but if they do, I have a feeling they can handle it.
Just in case any of you get accosted by a Sarah Palin fan who wants to know how that “hopey changey thing is workin out for ya,” you can check out this handy list of awesome hopey changey things Obama has done in the past year or so in office. Then you can say, “Well, it’s workin’ out pretty darn well, actually!” And then you can feel like another sticker I saw in a parking deck today– like a Righteous Babe (or Dude):
A Salon piece called Hipsters on Food Stamps has provoked a lot of outrage, most of it pretty hilarious to me. It seems that people on food stamps just can’t catch a break. First they’re stereotyped as Escalade-driving “Welfare Queens” who have the audacity to buy chips and sodas and other unhealthy food with their government benefits. Now we’re mad that this recession has put young professionals out of work, they’re on food stamps, and they have the gall to buy fresh, organic produce with their benefits? (For a great response, see this piece by an actual “hipster” on food stamps.)
Personally, as someone interested in sustainable food, I’ve been heartened to see increased efforts to get people on food stamps access to healthy produce and other food, including getting farmers’ markets to accept food stamps. A major reason people in poverty have higher rates of obesity is a lack of access to fresh and healthy food in poorer communities. Instead of scoffing at people who buy eggplant with food stamps, we should be glad that they’re eating in a way that is good for themselves (which holds down health costs for everyone) and the planet.
Food stamps, contrary to popular belief, actually put money INTO the economy. People use food stamps to buy food, which puts money in the pockets of store owners and allows them to create jobs. The U.S. Department of Agriculture calculates that for every $5 of food-stamp spending, there is $9.20 of total economic activity. In fact, food stamps are a more effective, faster-acting, and direct economic stimulus than tax cuts. The next time you think that, “as a taxpayer,” you’re entitled to judge the food choices of any individual on food stamps, you should remember that they don’t owe you anything, they don’t really cost you anything, and if anything, their benefits are benefiting your community too.
In addition, I often wonder if people who criticize the choices of people on any form of government benefits have ever had to rely on government benefits themselves. I didn’t know much about government benefits until I became unemployed in fall 2008. When I was laid off, I applied for unemployment benefits, and was shocked to realize just how meager my monthly “wage” would be on unemployment. It didn’t even begin to cover COBRA to replace the health insurance I lost along with my job, for example. If I had not been married to someone who remained employed, I would not have been able to afford to house and feed myself. While people may point to a few people who manage to “milk the system,” the vast majority of people on any sort of government benefits truly need them, and are barely squeaking by. Yesterday I saw someone claim that there are Medicaid recipients who drive Escalades and have iPhones. I mentioned this to my husband, who sees many Medicaid patients as a pediatrician, and he laughed at how far-fetched the idea is. Are there some people who may live like that and still draw Medicaid benefits? I’m sure you could find a few. But it’s worth remembering that this is not the average.
I know the current populist rage seems to be pitting “working people” against the entire rest of the country. I just pray that instead of begrudging the benefits of our neighbors who are dealing with hard times, we could think for a minute that we’re lucky we, ourselves, don’t need them right now, and be grateful that such a safety net is there if we need it, because we never know when we might.
My friend Adam posted a great link to his Facebook today. It’s an open letter to the Tea Partiers by John H. Richardson in Esquire. Many of these protesters, opposed to what they call “big government” like to claim that things like health care are part of “big government,” are antithetical to American values, and are perhaps even unconstitutional.
Claims like those make me wonder if perhaps these patriotic protesters somehow missed US history. Taking care of each other, interdependence, and community spirit are founding American values. Most of our early colonies were founded as “commonwealths,” where the good of everyone was considered crucial to the good of the colony. According to the Esquire piece:
Way back in colonial times, Americans spent between “10 and 35 percent of all municipal funds” on what was then called “relief,” according to Walter I. Trattner’s standard textbook on the subject, From Poor Law to Welfare State: A History of Social Welfare in America. Aid to the poor and sick was the largest single government expense, providing crucial sustenance to the widows and orphans of the Indian wars, the survivors of epidemics, starving immigrants, and a surprising number of abandoned bastard children (during the Revolutionary era, between a third and 50 percent of all first children were illegitimate — take that, nostalgists of family values!).
I’d also add that a democracy is only ever as strong as its citizens. Only people who are free from basic want, secure from preventable disease, protected in the event of catastrophic illness, and ensured a basic level of education and employment are able to be the kind of citizens who can participate fully in a system of representative democracy. Our constitution’s preamble asserts that the purpose of the document and the government it establishes includes a responsibility to “provide for the general welfare.” It is for this reason that our founders, notably John Adams (who is my favorite and for whom I am crusading for a monument in Washington D.C., although that is a subject for another post), were so adamant that public education be a cornerstone of our democracy (which is why I am personally very passionate about the subject of public education and not a huge fan of private or home school, though of course people should have those as choices). I see public health as an extension of that concept. If medicine had been more of an established science at the time of our nation’s founding, I’m sure providing for the public health would have been more explicitly mentioned. (As an aside, I’d encourage any vaccine doubters to see the John Adams miniseries and observe what a miracle early innoculation was for this nation.)
The bottom line is, for all the rugged individual John Wayne-iness of this nation, there’s an equal tradition of people coming together to create communities dedicated to the good of all. We can’t be the shining city on the hill if our image is tarnished by people in this great nation unable to access even basic medical care, with people always at risk of poverty and homelessness if a catastrophic illness should befall them or a loved one.
I sure hope we get a vote on a final health care reform bill this week. Bills have already passed the House and the Senate, and now we just need those two bodies to come together to get something passed for President Obama to sign.